Community
Programs
To serve patients and their families living in outlying counties,
the Duke University Comprehensive Sickle Cell Center has established
formal cooperative ties with two community sickle cell programs
and also works closely with the educator-counselors of the NC
Sickle Cell Syndrome Program. The staffs of the
community-based centers, as well as the staff of the state program,
are involved in community, patient and provider education; screening;
counseling persons identified as having sickle cell disease, sickle
cell trait or a variant hemoglobin disorder; and comprehensive patient
support services (e.g., patient follow-up and referrals, some transportation
and financial assistance).
Operation Sickle Cell,
Inc. serves Cumberland, Hoke, Harnett, Scotland
and Robeson counties. For further information contact Operation
Sickle Cell, Inc., 1207 Murchison Road, Fayetteville, NC 28301 or
call (919) 483-0514. Email: osc@mail.faynet.com
The Sickle Cell
Anemia Foundation of the Piedmont serves
Alamance, Caswell, Guilford, Randolph and Rockingham counties. The
main office is located at 1102 E. Market Street, P.O. Box 20964,
Greensboro, NC 27420; telephone (919) 274-1507. Email: scdap@aol.com
Sickle Cell Disease
Association of the Southern Piedmont is located
in Charlotte. Email: scdasp@bellsouth.net
Bridges Pointe Foundation
is a community outreach service affiliated with the Duke University
Comprehensive Sickle Cell Center. The organization seeks to promote
the development of supportive services for young adults with sickle
cell disease, to empower them for independent living, and to enhance
their quality of life by providing: affordable shelter, case management,
comprehensive education, an employment and training program, computer
training, psychosocial interventions, self-care and health education.For
more information visit the Bridges
Pointe Foundation website
NC sickle Cell Disease
Consortium
The Duke Comprehensive Sickle Cell Center also provides leadership
and support to the NC Sickle Cell Disease Consortium. This state-wide
body includes a group of multi-disciplinary sickle cell care providers,
patients and interested citizens. They convene quarterly to consider
issues affecting people with sickle cell disease, their families
and their health care provider networks, to address these issues,
and to promote solutions. For more information contact
the Duke Sickle Cell Center at (919) 684-6464 or Email Ms.
Whitworth.
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